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Archive for December, 2010

Relationships and Rheumatoid Arthritis w/Break-Ups

December 13, 2010 Leave a comment

 

Lets face it, break-ups are hard, on both guys and girls. However, I have come to believe they are even harder on people dealing with an Auto Immune Disease. Why, because we tend to have a sensitive/guilty view of things. Also, in our mind, we will always wonder how and if our illness played a role in the demise of the relationship. No matter what the person says, we will always wonder if the person would have stayed if I didn’t have Rheumatoid Arthritis, if it didn’t take me 20 minutes to get out the bed, if I didn’t get sad when I get bad reports from my doctor, if I didn’t need help getting out of the tub when humidity kicks in.  All these “Ifs” play over and over in our head when dealing with a break-up. But the truth of the matter is, we will never truly know, unless the person tells us and even then, will we truly believe them??

Truth of the matter, why keep wondering “If”, it just drives you crazy, and more than likely the other person is not spending their time wondering “If” so why should you.  I have been reading this great book “It’s a Break-Up, not a Breakdown” by Lisa Steadman, and one thing she recommends when wondering about your “Ifs”, why not write down the things that make you fabulous. Even though the book is not about dealing with a life long illness, I think we more so need to do this exercise, even when we are not going through a break-up.  I loved the idea so much, I decided to write down what makes me fabulous and post it on my bathroom mirror. In hopes of helping me focus on my fabulousness instead of focusing on what makes me sick. Besides, I think about what makes me sick way too much, it is much more fun to think about what makes me Fabulous.

10 Things that make me Fabulous

  1. Great pair of legs, scars and all
  2. Not afraid to speak in front of an audience
  3. Compassionate, Kind Hearted and Loving
  4. Gorgeous Hair
  5. Great Sense of Humor
  6. Always up to try new things
  7. Great Sense of Style
  8. Well Read and Educated
  9. Independent
  10. Spiritual

What are the 10 things that make you Fabulous? Post them here and Post them up to help remind you of how fabulous you are on a daily basis.

Pain Medication Recall

December 11, 2010 Leave a comment

Darvocet Recall – Potentially Fatal Heart Abnormalities Final Straw

November 20, 2010

 

Xanodyne Pharmaceuticals, Inc. is cooperating with the FDA in recalling Darvocet and Darvon, their versions of the pain killer propoxyphene. Darvon, which is also sold as Darvocet (with acetaminophen added), could cause serious and potentially fatal heart rhythm abnormalities, according to new clinical data reviewed by the FDA.

An outside advisory panel to the FDA recommended last year that Darvon and Darvocet be pulled from the market after concluding that the pain relief benefits of the drugs didn’t outweigh the significant risk of side effects related to overdose and addiction. However, the FDA is not required to follow the advice of the panel, and the two pain killers remained on the market until recent electrocardiography data from a clinical study revealed QT interval abnormalities occurred in healthy people taking normal doses of the drugs.

The main active drug in Darvocet and Darvon is propoxyphene, which the FDA has also removed from the market, affecting other generic versions of this widely prescribed pain medication.

Doctors have been asked to stop prescribing these drugs, and patients taking the medication are being advised to see their physician to discuss switching to another pain killer.

www.usrecallnews.com

Categories: In the News

Who is this?

December 9, 2010 4 comments

Main Imge

I am a young women who has had the pleasure of living Rheumatoid Arthritis for the past 10 years. Before the onset of my illness, I was living a fabulous life, working a fast pace job with huge advancement opportunities, married, dressing in sassy outfits, sexy shoes and doing whatever I wanted, when I wanted. My favorite pass time was shopping, hanging out with the girls and getting out enjoying life. Then it hit me, and over the years it hit harder and harder. Eventually, I was no longer on my own time, I was on my body’s time. The outfits became less sassy and the shoes were nowhere near sexy..lol I had to stop working, more and more of my income had to go to medication/treatments, and the bed became a big part of my life.

These changes were devastating to my ego, self-esteem and overall sense of self. I have had many ups and downs in regards to my health, and I work hard to maintain a positive attitude and great spirit, but it is not easy. I hear “You are too young to have Arthritis” and “You don’t look sick” at least 3 times a month and cringe every time I hear these comments. I have spent years in denial about my illness and the impact it has had on my every day life, not just from a work aspect, but friendships, family and dating relationships. I spent more time trying to pretend I am not sick to protect others feelings than I did worrying about my own feelings, which I recently learned does not work. I am learning to accept my illness, but I just refuse to give up being fabulous. Yes I am sick and Yes I am Fabulous!

As part of accepting my illness I tried to seek out others in my situation, I checked out support groups and online forums, however I found it challenging to find people I could identify with. People who are vibrant and fabulous but just happen to be sick. So I made the decision to start my own forum to discuss things such as health, comfortable clothing, sexy but still comfortable shoes, savings and sales events, dating/relationships and how to maintain a positive outlook on life. I am learning more and more each day about accepting my illness and learning how to enjoy my life as much as possible. I take this journey called life with my partner (Rheumatoid Arthritis) day by day.

I want this page to be a place where I can share my experiences with others and network with those in a similar situation. A place where we can learn from each other on coping mechanisms, how to communicate to others about your illness, fabulous items that make life easier, health tips, health news and how to enjoy life. How to still be fabulous when you just happen to be sick.

Categories: My Bio

5 Tips on how to make Yoga class work when you have a disability…

December 9, 2010 Leave a comment

All the experts say Yoga is a great way to stretch your muscles, relieve stress and get some very much needed gentle exercise. However when you see people in certain extreme poses, it can be a little intimidating. But now, I must admit that I personally love Yoga, it is low-impact and very relaxing. However when your body has certain restrictions, some of the poses can range from challenging to down right impossible. And if you are taking a class with a hands on teacher, they are eager to help try and push you into the proper position.  Which may be great for some, but for those of us with body restrictions certain movements are a NO-NO.  So what do you do to get the most out of your Yoga class for which you have paid for with your hard earned money? Well here are a few suggestions that I found helped me with my Yoga experience:

1.)  The Studio. If you are going to a Yoga studio, select one with various levels and types of classes. This allows growth in your Yoga experience and the chance to sample each class until you find the one perfect you. You should also ask for their advice on which they believe is the most appropriate class for your level of ability. Make sure you ask a qualified Yoga instructor and not just the desk receptionist.

2.)  Be Early on your 1st Day. Try to get to the class a few minutes early to talk with your Yoga instructor. Let them know your body restrictions and request for them to provide alternative poses during class. This will help you get the most out of the class while preventing you from doing hurtful poses.

3.)  Props! Props! Props! Don’t be afraid to use props such as rolled towels or blocks to add support when trying to achieve certain poses. Most reputable Yoga studios have them available for use free of charge. Call ahead to verify, if not, bring your on.  Try Target, Wal-Mart or Marshall’s, they have some great prices.

4.)  Please Don’t Touch. If you are sensitive to touch, request that when your instructor has a recommended alternative pose, to let you know verbally. Let them know upfront that you do not like to be touched, without permission.  If your instructor is a professional, they will not be offended. If they are too bad, remember, it is your body and an unwanted movement can hurt. Remember you are they to help your body, not hurt your body.

5.)  Take a break. If any pose is too difficult, feel free to sit down until they move to an accommodating pose. Trust me you will not be the only person sitting, just try to remain still and not to disturb the other participants. If you find yourself at your limit during class, quietly excuse yourself from the class.

These five tips can really help make your Yoga experience wonderful and allow you to really get the health benefit of the Yoga poses. Enjoy!

Scholarships for those with Rheumatoid Arthritis

December 8, 2010 Leave a comment

UCB Announces the Family RA Scholarship Program

In 2008, UCB conducted a pilot scholarship program that awarded 1o scholarships of $10,000 each, to students living beyond boundaries of rheumatoid arthritis (RA).  The program was such a success that UCB expanded the scope to 31 one-time scholarships in 2009 and another 30 in 2010. In 2011, UCB will again award 30 scholarships of up to $10,000 each to qualified applicants.

This opportunity extends to people diagnosed with RA and their immediate family members (Parent, Spouse, child or sibling) who are seeking an associate’s, undergraduate, or graduate degree or are enrolled in a trade school educational program. The application submission deadline is March 18, 2011.

Click on the link below for further information..

http://www.reachbeyondra.com/scholarship/default.aspx


Categories: Awareness